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 Welsh government's 'opt out' organ donor consultation

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PostSubject: Welsh government's 'opt out' organ donor consultation   Welsh government's 'opt out' organ donor consultation I_icon_minitimeTue Nov 08, 2011 12:10 am

Person signing organ donation card Currently people sign up to a register to donate organs
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Families will have no legal right to stop dead relatives' organs being used for transplant if the person has not opted out in advance, the Welsh government has confirmed.

Ministers are asking for views on plans for a "soft opt-out" system.

Wales would be the first country in the the UK to use such a system, with the law due to be in place by 2015.

Health Minister Lesley Griffiths said the lack of organs and tissues caused unnecessary deaths and suffering.

The law would require people to opt out of donating their organs when they die, rather than opting in by signing the register.

Doctors' leaders hope it will "change cultural expectations" and prompt more family discussions about donation.

First Minister Carwyn Jones will unveil the plans at the transplant unit at the University Hospital of Wales, Cardiff, on Tuesday morning.

The system is designed to increase the number of organ and tissue donors, if legislation is approved.
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Analysis by Arwyn Jones, BBC Wales health correspondent

At the moment the wishes of the deceased are given priority.

If someone is on the organ register their families cannot refuse for their organs to be donated.

But if the family object and a dead relative has not asked for organs to be donated, then organs will not be used.

Under the Welsh government's proposals people will be considered to have made an "expressed view" that they want their organs to be donated, unless they opt out.

The government wants families to be consulted and involved in the decision making process around donation following the death of a relative.

But there will not be a family veto against allowing organs to be used.

Families will have no legal right to stop dead relatives' organs being used for transplant if the individual has not opted out in advance.

The Welsh government's white paper sets out proposals for how the system would work:

* Only people aged 18 or over who both live and die in Wales would be included under the system
* People must have lived in Wales for a sufficient period of time before being included in the opt-out system - the white paper invites views on how long that period should be
* It proposes four options for how people's wishes on donation could be recorded - a register for Wales of persons who have not objected, and a register of persons who have objected; a register for Wales of only those persons who have not objected; a register for Wales of only those people who have objected; no registers but a record of objection given to and held by GPs.

Ms Griffiths said the Welsh government believed the legislation would go a long way to increasing the number of organs and tissues available.

"When people die, donation of their organs and tissues is often possible but currently does not happen - not because they did not wish to donate but because they never got round to joining the organ donor register," she said.
'Significant step'

"Repeated surveys show that the overwhelming majority of people in the UK and Wales believe in organ donation, but only one in three people in Wales have joined the organ donor register.

"Last year 67% of donors were not on the organ donor register. Therefore we believe creating an environment in which donation is the norm will enable more organs to be available."

The minister added: "Introducing a soft opt-out system will mean people are more likely to make decisions about donation during their lifetime and to have discussed their wishes with their family."
Continue reading the main story
Transplant activity in Wales 2010/2011

* There was a 60% increase in the number of deceased donors to 66 (in Welsh hospitals).
* The number of donors after brain death increased by 45% to 39 and after circulatory death by 90% to 27.
* There was an increase in the Welsh consent rate after brain death from 59% to 66% and after circulatory death from 28% to 62%.
* The number of patients registered for a transplant fell slightly to 306 were waiting at the end of March 2011 and 122 had been temporarily suspended. 49 died waiting.
* Nearly 200 patients received treatment.
* Source: Kidney Wales Foundation

The British Heart Foundation called for the UK's other governments to follow Wales' lead, saying an opt-out system would prove to be the difference between life and death for many families.

"Wales has taken a substantial and significant step towards implementing a proven system that will see more heart patients receive the organs they need to stay alive," said Maura Gillespie, the foundation's policy and advocacy manager.

"An opt-out system would better reflect the wishes of the majority of people, and fill the void between good intention and action."

Roy J Thomas, chairman of Kidney Wales Foundation, described the government's plan as "a progressive move by Wales".
'Cultural expectations'

"The UK has one of the lowest donor rates in Europe," he said. "Wales will take the lead and show that we must presume to have conversations on this important issue."

Mr Thomas said presumed consent in itself was not the solution but rather a key facilitator within a well developed system and infrastructure for organ donation and transplantation.

"There has already been a significant increase in the number of donors in Wales to 66 in 2010/11 and the people of Wales understand this debate," he said.
Continue reading the main story
“Start Quote

One of the real problems I've got with presumed consent is that it undermines trust”

End Quote Glyn Davies MP Conservative, Montgomeryshire

Dr Tony Calland, chairman of the BMA's medical ethics committee, said it fully supported the move.

"The fact is that every year people die whilst waiting for organs, and evidence from other countries has shown that an opt-out system can address the shortage of organ donors and can save lives.

"We hope that a move to a soft opt-out system would change cultural expectations in society, and prompt more discussion within families about organ donation," he said.

But Glyn Davies, Conservative MP for Montgomeryshire, said he would be seeking time in Westminster to debate the issue.

Mr Davies said presumed consent would only deliver "a fraction more organs".

"One of the real problems I've got with presumed consent is that it undermines trust," he said.

"I don't mind moving towards a presumptive attitude because almost everybody is in favour of organ donation so it's reasonable to have a presumptive attitude.

"But if there's presumed consent, then there's a suspicion and I think that does affect trust."

Consultation on the proposals outlined in the white paper and closes on 31 January 2012.

The Welsh government said a bill would be introduced in 2012. Legislation could be in place by 2013 and a soft opt-out system could come into effect in 2015.

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